Clinical Edge

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Issues of Importance to Breast Cancer Patients

What information do patients want?

Patient-reported outcome measures that only evaluate symptoms are not responding to what patients say they need, according to an anonymous, cross-sectional web-based survey of 1,072 women with a diagnosis of breast cancer. Researchers found:

  • The top 5 issues were all global issues, rather than symptoms
    • Maintaining quality of life
    • Maintaining independence
    • Ability to perform normal activities
    • Ability to concentrate
    • Ability to sleep

  • Specific symptoms among the 10 highest rated items were:
    • Fatigue
    • Depression
    • Anxiety
    • Shortness of breath
    • Pain

Citation: Hollen PJ, Msaouel P, Gralla RJ. Determining issues of importance for the evaluation of quality of life and patient-reported outcomes in breast cancer: results of a survey of 1072 patients [Published online ahead of print May 17, 2015]. Breast Cancer Res Treat. doi:10.1007/s10549-015-3420-5.