Rare Diseases
News
Canada Adopts First-Ever Rare Disease Strategy
News
Foundation for Prader-Willi Research and NORD Launch Global Registry
News
NORD Issues Statement on Approval of 21st Century Cures Initiative and Introduction of OPEN Act
News
NORD, EURORDIS, and Rare Disease Organizations in 30 Nations Announce an International Rare Diseases Alliance (copy 1)
Article
Coats Disease Foundation Publishes Resource for Parents of Newly Diagnosed Children
Article
Pediatric Endocrine Society Publishes Guidelines for Evaluation and Management of Persistent Hypoglycemia
Conference Coverage
First gut microbiota alterations described in systemic sclerosis patients
Key clinical point: Alterations in gut microbiota of patients with systemic sclerosis are suspected to contribute to the immune dysfunction and...
Conference Coverage
VIDEO: Do pathogenic intestinal bacteria drive scleroderma GI symptoms?
News
Bill to speed FDA approvals includes rewards for drugs designed for kids
News
Nonprofits launch web campaign to raise awareness about scleroderma
Nonprofit organizations urge public to teach others about scleroderma.
Conference Coverage
ASCO: Eribulin results ‘a giant step for sarcoma’
Key clinical point: Eribulin is the first drug shown in a clinical trial to offer a survival advantage over existing therapies for metastatic soft...