Rare Diseases

News

Don’t defer antiretrovirals in asymptomatic HIV patients

Author:

Mary Ann Moon

Start antiretroviral agents immediately in asymptomatic HIV patients, regardless of CD4+ count.

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News

New guidelines focus on pediatric thyroid nodules and cancer

Author:

Sharon Worcester

The American Thyroid Association has released the first-ever guidelines for the evaluation and management of thyroid nodules and cancer in...

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News

When rare diseases are mistaken for child abuse

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News

World Federation of Hemophilia Seeks Proposals

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News

Progeria Research Foundation is Accepting Applications for Grants

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News

Congenital Hyperinsulinism International Issues Statement of Support for New Recommendations

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Funding Opportunities From the Vasculitis Foundation

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NIH NCATS Researchers Partner with Patient Organizations

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White Paper Affirms Value of Orphan Drug Tax Credit in Promoting R&D

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Pediatric Family History to Be Subject of Webinar

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200 Patient Organizations Join NORD in Letter to Energy and Commerce Committee

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