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Parent-Centered Decision Making in the Neonatal ICU

JAMA Pediatr; ePub 2018 Mar 19; Weiss, et al

Preferences for parent-centered vs medical team-centered decision making among parents of infants in the neonatal intensive care unit (NICU) may vary systematically by the characteristics of particular clinical decisions, according to a recent study. This cross-sectional survey assessed parents’ preferences for parent- vs medical team–centered decision making across 16 clinical decisions, along with parents’ assessments of 7 characteristics of those decisions. Respondents included 136 parents of infants in 1 of 3 academically affiliated hospital NICUs in Philadelphia, PA, from January 7 to July 8, 2016. Respondents represented a wide range of educational levels, employment status, and household income but were predominantly female (109 [80.1%]), white (68 [50.0%]) or African American (53 [39.0%]), and married (81 of 132 responding [61.4%]). Researchers found:

  • Among total respondents, preferences for parent-centered decision making were positively associated with decisions that involved big-picture goals and that had the potential to harm the infant.
  • In contrast, preferences for parent-centered decision making were inversely associated with the following 4 decision characteristics:
  1. technical decisions,
  2. the potential to benefit the infant,
  3. requiring medical expertise, and
  4. a high level of urgency.
Citation:

Weiss EM, Xie D, Cook N, Coughlin K, Joffe S. Characteristics associated with preferences for parent-centered decision making in neonatal intensive care. [Published online ahead of print March 19, 2018]. JAMA Pediatr. doi:10.1001/jamapediatrics.2017.5776.