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Rare Diseases

Conference Coverage

Tandem beats single ASCT for childhood neuroblastoma

Author:: Daniel M. Keller

Publish date: June 9, 2016

Key clinical point: Neuroblastoma event-free survival was better with tandem than with single ASCT. Major finding: Event-free survival was 61%...

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Conference Coverage

Adjunctive Everolimus Reduces Seizures Associated With Tuberous Sclerosis Complex

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News

Free Webinar Planned for Those Interested in Referring or Applying to NIH Undiagnosed Diseases Network

Publish date: May 13, 2016

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News

NORD to Develop Natural History Studies With 20 Rare Disease Patient Organizations

Publish date: May 13, 2016

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News

Patient Assistance Programs Fill Vital Need for Those With Rare Diseases

Publish date: May 13, 2016

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News

$6.8 Million Awarded to Study the Biology of Rare and Undiagnosed Diseases

Publish date: May 13, 2016

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Literature Review

For Patients With Myasthenia Gravis, Stem Cell Transplants May Lead to Long-Term Remission

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Literature Review

Case Study Improves Understanding of Zika Virus

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Literature Review

New Insights Into Phenylketonuria’s Impact on the Brain

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News

NIH and FDA Release a Draft Clinical Trial Protocol Template for Public Discussion

Publish date: April 21, 2016

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News

NORD Speaks on Behalf of Continued Funding for NIH Undiagnosed Diseases Network

Publish date: April 21, 2016

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