News

Patient Assistance Programs Fill Vital Need for Those With Rare Diseases


 

References

Some health care analysts have criticized patient assistance programs (PAPs) as a cause of growth in prescription drug spending and overall health care costs. The National Organization for Rare Disorders (NORD) has published a position statement to address this issue and explain the essential function of charitable assistance programs for patients with rare diseases. Specifically, NORD’s position is that PAPs do not inflate the cost of treatment and that they ensure patient access to lifesaving therapies. Read NORD’s position paper.

Recommended Reading

FDA Offers New Resource on Biosimilars for Health Care Providers (copy 1)
MDedge Neurology
Drug May Improve Speech and Swallowing in ALS
MDedge Neurology
NORD Announces 2016 Rare Impact Award Recipients
MDedge Neurology
Free Summer Camp For Families of Children With Rare Diseases
MDedge Neurology
NORD Speaks on Behalf of Continued Funding for NIH Undiagnosed Diseases Network
MDedge Neurology
NIH and FDA Release a Draft Clinical Trial Protocol Template for Public Discussion
MDedge Neurology
News From NORD Round-Up: April 2016
MDedge Neurology
New Insights Into Phenylketonuria’s Impact on the Brain
MDedge Neurology
Case Study Improves Understanding of Zika Virus
MDedge Neurology
For Patients With Myasthenia Gravis, Stem Cell Transplants May Lead to Long-Term Remission
MDedge Neurology