News from NORD

NORD Welcomes All Things Kabuki as New Member


 

All Things Kabuki , an organization providing awareness, education, and support on behalf of those affected by Kabuki syndrome, is NORD’s newest member organization. Read NORD’s Rare Disease Database report on Kabuki syndrome.

Recommended Reading

Studies support early use of genetic tests in early childhood disorders
MDedge Neurology
How Can Neurologists Help Manage Symptoms in Patients With ALS?
MDedge Neurology
How to Keep Pace With Genetic Advances in Movement Disorders
MDedge Neurology
Screening MRI misses Sturge-Weber in babies with port-wine stain
MDedge Neurology
Preview Agenda for NORD’s 2017 Rare Diseases and Orphan Products
MDedge Neurology
FDA Commissioner to Present Keynote Address at NORD Summit
MDedge Neurology
Examining the Role of Caregivers at NINR Caregiving Summit
MDedge Neurology
FDA Launches Expanded Access Navigator
MDedge Neurology
Columbia Neurosurgery Article Highlights Medical Expert’s Support for NORD Patient Information
MDedge Neurology
AA MDS Offers Webinar Series
MDedge Neurology