News from NORD

Columbia Neurosurgery Article Highlights Medical Expert’s Support for NORD Patient Information

Publish date: August 9, 2017

 

An article on the Columbia University Medical Center website describes how neurosurgeon Jeffrey Bruce, MD, helped NORD develop a report for patient/family education on anaplastic astrocytoma. Dr. Bruce is one of many rare disease medical experts who volunteer their time and expertise to help NORD provide information on rare conditions for patients and their families.

Recommended Reading

First Clinical Trial of a Genetic Therapy for Huntington’s Disease Nears Completion
MDedge Neurology
How Often Are EEGs Overread?
MDedge Neurology
Studies support early use of genetic tests in early childhood disorders
MDedge Neurology
How Can Neurologists Help Manage Symptoms in Patients With ALS?
MDedge Neurology
How to Keep Pace With Genetic Advances in Movement Disorders
MDedge Neurology
Screening MRI misses Sturge-Weber in babies with port-wine stain
MDedge Neurology
Preview Agenda for NORD’s 2017 Rare Diseases and Orphan Products
MDedge Neurology
FDA Commissioner to Present Keynote Address at NORD Summit
MDedge Neurology
Examining the Role of Caregivers at NINR Caregiving Summit
MDedge Neurology
FDA Launches Expanded Access Navigator
MDedge Neurology