NORD, EURORDIS, and Rare Disease Organizations in 30 Nations Announce an International Rare Diseases Alliance (copy 1)

The leading rare disease patient organizations in the US and Europe—NORD and EURORDIS—together with rare disease umbrella organizations from 30 nations around the world have launched a new global alliance to be known as Rare Diseases International. The collaboration was announced May 28th at a meeting in Madrid. NORD will be the US representative in this alliance, which also adopted a joint declaration for rare diseases to be an international public health priority. Read the press release.