News from NORD

Pulmonary Hypertension Association and ATS to Host PH Program


 

On May 20, 2017, in Washington DC, the Pulmonary Hypertension Association (PHA) and the American Thoracic Society will host a program in which participants can learn from leading pulmonary hypertension experts and meet other patients, families and caregivers. The event is part of a Meet the Experts session hosted by PHA and the American Thoracic Society’s Public Advisory Roundtable.

Recommended Reading

NORD Issues RFPs for 2017 Research Grants for Study of Rare Diseases
MDedge Hematology and Oncology
NORD Rare Action Network Issues Spring 2017 State Policy Legislative Tracker
MDedge Hematology and Oncology
NIH Workshop Focuses on Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis
MDedge Hematology and Oncology
Children’s Cardiomyopathy Foundation Announces Research Funding Availability
MDedge Hematology and Oncology
Cutaneous Lymphoma Foundation Conference to Take Place June 24-25
MDedge Hematology and Oncology
DUP15q Alliance to Host Scientific Symposium and Family Conference
MDedge Hematology and Oncology
Immune Deficiency Foundation Seeks to Connect With Those Diagnosed With WHIM Syndrome
MDedge Hematology and Oncology
Wyck Foundation and Myotonic Dystrophy Foundation Offer Training Fellowships
MDedge Hematology and Oncology
Organic Acidemia Association Launches Natural History Study With NORD
MDedge Hematology and Oncology
Platelet Disorder Support Association to Present Annual ITP Update
MDedge Hematology and Oncology