News from NORD

15th International Symposium on MPS and Related Diseases Is Planned


 

Registration is now open for the 15th International Symposium on MPS and Related Diseases, to take place in San Diego from August 2-4, 2018. The symposium will feature opportunities for scientific enrichment as well as family fun.

Abstracts for the symposium are being accepted until January 8. For more information, visit the website or email pdickson@labiomed.org.

Prior to the symposium, on August 1 at the same location, a one-day workshop will cover the clinical features of MPS and related diseases, including demonstrations of findings on volunteers affected with the conditions as well as basic disease biology, current work in diagnostic and therapeutic development, and biotechnology opportunities.

Recommended Reading

Report on Li-Fraumeni Syndrome Now Available From NORD
MDedge Neurology
NORD Leads Campaign to Save Orphan Drug Tax Credit
MDedge Neurology
Webinar Recording on Open Enrollment Available
MDedge Neurology
Nominate a Colleague or Patient for a NORD Rare Impact Award
MDedge Neurology
NORD Reopens Call for Abstracts for Research Grants
MDedge Neurology
Poster Abstracts Due January 31 for European Conference on Rare Diseases and Orphan Products
MDedge Neurology
Beta Version of ClinicalTrials.gov Website Available for Public Testing
MDedge Neurology
NORD Welcomes Five New Member Organizations
MDedge Neurology
Guthy-Jackson Charitable Foundation Produces New NMO Podcast
MDedge Neurology
New Book Chronicles Advances in Understanding NMO and Provides Blueprint for Other Rare Diseases
MDedge Neurology