VHL Alliance Publishes Suggested VHL Surveillance Guidelines

The VHL Alliance has published suggested surveillance guidelines approved by the VHLA Clinical Advisory Council regarding testing for individuals at risk for von Hippel-Lindau disease (VHL) who do not yet have symptoms or those who are known to have VHL but do not yet symptoms in a particular area. The unaffected organs should still be screened. Read the screening guidelines. View a list of organs that can be impacted by VHL.