News from NORD

Join 7,000 Miles Campaign to Support Programs for Rare Disease PatientsJoin 7,000 Miles Campaign to Support Programs for Rare Disease Patients


 

In anticipation of “Rare Disease Day” on February 28, 2018, NORD will be hosting a “7,000 Miles Campaign” for everyone interested in showing support for rare disease patients. The campaign will run from February 1 through February 28, and the goal will be for participants to walk, run, or cycle 7,000 miles during that time period. Funds raised will support NORD’s programs of advocacy, education, research, and patient services. Everyone seeking to improve the lives of rare disease patients is invited to participate and to share information about the campaign with others. More info .

Recommended Reading

Collaborative Effort Is Underway to Screen Small Molecules for Therapeutic Potential for NGLY1 Deficiency
MDedge Internal Medicine
Gene silencer reduces mutant huntingtin protein in early-stage Huntington’s patients
MDedge Internal Medicine
Cardiosphere-derived cells may reverse Duchenne heart scarring
MDedge Internal Medicine
FDA grants breakthrough therapy designation for severe aplastic anemia drug
MDedge Internal Medicine
Living With Aplastic Anemia Patient and Family Conferences
MDedge Internal Medicine
Cornelia de Lange Syndrome Foundation Call for Abstracts
MDedge Internal Medicine
HCU Network America Grant Requests
MDedge Internal Medicine
National Niemann-Pick Disease Foundation Seeks Executive Director
MDedge Internal Medicine
National Tay-Sachs & Allied Diseases Association Grants Available
MDedge Internal Medicine
Osteogenesis Imperfecta Foundation Biennial Conference
MDedge Internal Medicine