“Long waits in emergency rooms, encounters with caregivers who are unfamiliar with CVS, receiving implausible diagnoses, the repetition of unrewarding diagnostic procedures, and stopgap intravenous hydration followed by being sent home still sick are common experiences that reinforce patients' feelings of being out of control of an illness that no one understands or can treat,” Dr. Fleisher wrote in his 2005 report on the 41 adult patients (see
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He urges physicians to develop a working collaboration with each patient to ascertain what exacerbates and controls CVS symptoms for that individual.