Rare Diseases
Article
NORD Updates Educational Rare Disease Reports
Article
NCATS Unveils Toolkit for Patient-Focused Therapy Development
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Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
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NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
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Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
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More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
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RFPs Available for the Study of Three Rare Diseases
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2018 Marks 35th Anniversary of NORD and the Orphan Drug Act
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Register Now for NORD’s Rare Impact Awards Celebration
Video
Maintenance chemo boosts survival for youth with high-risk rhabdomyosarcoma
CHICAGO - Lead study author Dr. Gianni Bisogno discusses the practice changing results and describes plans for a new trial to explore alternate...
Conference Coverage
Malignant pleural mesothelioma guidelines often are ignored
SAN DIEGO – As many as 32% of patients received no treatment, but their median months of survival weren’t much different than others.