News from NORD

Cure SMA


 

Cure SMA is conducting a survey of pediatricians to assess baseline awareness regarding spinal muscular atrophy. Support Cure SMA and take the survey! More.

Recommended Reading

NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Hematology and Oncology
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Hematology and Oncology
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Hematology and Oncology
NORD Updates Educational Rare Disease Reports
MDedge Hematology and Oncology
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Hematology and Oncology
American Partnership for Eosinophilic Disorders (APFED)
MDedge Hematology and Oncology
Aplastic Anemia and MDS International Foundation (AAMDSIF)
MDedge Hematology and Oncology
Children’s Cardiomyopathy Foundation
MDedge Hematology and Oncology
Cornelia de Lange Syndrome (CdLS) Foundation
MDedge Hematology and Oncology
CurePSP
MDedge Hematology and Oncology