Rare Diseases
News
NIH and FDA Release a Draft Clinical Trial Protocol Template for Public Discussion
News
NORD Speaks on Behalf of Continued Funding for NIH Undiagnosed Diseases Network
News
Free Summer Camp For Families of Children With Rare Diseases
News
NORD Announces 2016 Rare Impact Award Recipients
News
News From NORD Round-Up: April 2016
Conference Coverage
New hope for primary sclerosing cholangitis treatment
A modified form of ursodeoxycholic acid could offer patients with primary sclerosing cholangitis the first real pharmacologic treatment option, it...
Conference Coverage
Colombia reports first Zika deaths, all in medically compromised patients
Five people with confirmed Zika virus infections have died in Colombia, and all had medical comorbidities.
Conference Coverage
Topical allantoin cream speeds wound healing in epidermolysis bullosa
Key clinical point: A 6% allantoin cream shows promise at healing wounds in patients with epidermolysis bullosa. Major finding: By 2 months, 82%...
Conference Coverage
Early estrogen likely prevents bone fractures in Turner syndrome
Improved bone mineral density
News
Lupus patients’ transition to adult care leaves gaps, delays in care
Key clinical point: Lupus patients undergoing transition need better education on the importance of prompt follow-up care with adult...