The International Pemphigus and Pemphigoid Foundation, which represents patients and families affected by these rare autoimmune skin diseases, will be honored at the NORD Portraits of Courage Celebration on May 19th in Washington DC.
The Foundation will receive NORD’s “Abbey S. Meyers Leadership Award”, which is NORD’s highest award for patient organizations and is named for NORD’s founding president. It recognizes leadership in advocacy and education on behalf of rare disease patients and their families.
The Foundation (http://www.pemphigus.org/for-medical-professionals/) provides information about current clinical trials as well as extensive information for physicians and other healthcare professionals on its website. Pemphigus and pemphigoid are chronic, rare, autoimmune blistering disorders that usually do not improve without active treatment.