News from NORD

DUP15q Alliance to Host Scientific Symposium and Family Conference


 

On July 27-28, 2017, the DUP15q Alliance will host its 2017 Science Symposium at the Luskin Conference Center, UCLA. On July 24-26, the 9th International DUP15q Alliance Family Conference will take place at Redondo Beach, California.

Recommended Reading

For girls with Turner syndrome, experimental fertility preservation may offer the hope of a baby of their own
MDedge Family Medicine
Cannabidiol cuts drop seizure frequency in Lennox-Gastaut syndrome
MDedge Family Medicine
VIDEO: About 1 in 20 ALS patients in Washington state chose assisted suicide
MDedge Family Medicine
Cushing’s appears to begin its cardiovascular effects during childhood
MDedge Family Medicine
Patient Advocacy Groups Oppose AHCA
MDedge Family Medicine
NORD Issues RFPs for 2017 Research Grants for Study of Rare Diseases
MDedge Family Medicine
NORD Rare Action Network Issues Spring 2017 State Policy Legislative Tracker
MDedge Family Medicine
NIH Workshop Focuses on Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis
MDedge Family Medicine
Children’s Cardiomyopathy Foundation Announces Research Funding Availability
MDedge Family Medicine
Cutaneous Lymphoma Foundation Conference to Take Place June 24-25
MDedge Family Medicine