NORD Publishes Basic Principles for Health Coverage Reform

Before the Affordable Care Act was enacted in 2010, many patients with rare diseases could not access health care coverage due to various discriminatory insurance practices, limited Medicaid eligibility, and debilitating cost-sharing. As the administration and Congress discuss repealing and/or replacing the ACA, NORD has published a Principles for Health Coverage Reform document outlining basic principles that must be maintained to protect health care coverage for rare disease patients.