Rare Diseases
News
Pediatric Family History to Be Subject of Webinar
News
200 Patient Organizations Join NORD in Letter to Energy and Commerce Committee
News
NORD and SLS Community Launch Registry for Patients and Researchers
News
NORD Announces Rare Disease Research Funding Opportunities
Conference Coverage
Naloxone lotion improves disabling itch in CTCL
Naloxone lotion eases severe pruritis in cutaneous T-cell lymphoma.
Photo Challenge
Nonblanchable Violaceous Macules of the Periorbital Skin
A 71-year-old white woman presented with nonblanchable, violaceous, monomorphic macules involving the bilateral periorbital skin, upper chest,...
News
Afamelanotide improves erythropoietic protoporphyria
Key clinical point: Afamelanotide is the first effective treatment for erythropoietic protoporphyria, an extremely painful photodermatosis that...
News
ACIP backs broader use of MenB vaccination to include adolescents and college students
The CDC’s ACIP supports use of the MenB vaccine in teens and college students, as recommended by a working group.
Conference Coverage
EULAR: Updated scleroderma guidance focuses on new treatments, approaches
News
Regular, outcomes-based treatment effective in vulvar lichen sclerosus
Women with vulvar lichen sclerosus who consistently used topical corticosteroids had significantly better symptoms, scarring, and rates of vulvar...