Rare Diseases
Article
NORD Rare Action Network Issues Spring 2017 State Policy Legislative Tracker
Article
NORD Issues RFPs for 2017 Research Grants for Study of Rare Diseases
Article
Patient Advocacy Groups Oppose AHCA
Video
VIDEO: Surgery succeeds with select hidradenitis suppurativa patients
Medication has its limits in some severe hidradenitis suppurativa cases, and patients can often benefit from surgical treatment.
Commentary
DTC genetic health risk tests: Beware
The Food and Drug Administration recently authorized 23andMe to provide consumers with results of germline DNA sequence variants associated with...
From the Journals
Infliximab safe for recently vaccinated Kawasaki patients
Live virus vaccines don’t impede use of infliximab in children with Kawasaki disease.
From the Journals
New diagnostic tool identifies severe ADAMTS13 deficiency
A new diagnostic tool – the PLASMIC score – predicts severe ADAMTS13 deficiency, effectively distinguishing thrombotic thrombocytopenic purpura...