News from NORD

Aplastic Anemia and MDS International Foundation (AAMDSIF)


 

AAMDSIF will be hosting seven “Living with Aplastic Anemia, MDS, PNH” patient and family conferences in cities around the country this year. Each free event offers opportunities to learn from leading medical experts and to connect with other patients and caregivers. More.

Recommended Reading

2018 Marks 35th Anniversary of NORD and the Orphan Drug Act
MDedge Dermatology
RFPs Available for the Study of Three Rare Diseases
MDedge Dermatology
More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Dermatology
Medical Nutrition Equity Act Capitol Hill Day Planned for June 1
MDedge Dermatology
NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
MDedge Dermatology
Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
MDedge Dermatology
NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Dermatology
NORD Updates Educational Rare Disease Reports
MDedge Dermatology
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Dermatology
American Partnership for Eosinophilic Disorders (APFED)
MDedge Dermatology