News from NORD

Cure SMA


 

Cure SMA is conducting a survey of pediatricians to assess baseline awareness regarding spinal muscular atrophy. Support Cure SMA and take the survey! More.

Recommended Reading

NORD and Other Patient Organizations Oppose Short-Term, Limited-Duration Health Plans
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Running for Rare Team Participates in Boston Marathon to Raise Funds for Undiagnosed Patients
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NCATS Unveils Toolkit for Patient-Focused Therapy Development
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NORD Updates Educational Rare Disease Reports
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Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
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American Partnership for Eosinophilic Disorders (APFED)
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Aplastic Anemia and MDS International Foundation (AAMDSIF)
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Children’s Cardiomyopathy Foundation
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Cornelia de Lange Syndrome (CdLS) Foundation
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CurePSP
MDedge Cardiology