News from NORD

Join 7,000 Miles Campaign to Support Programs for Rare Disease PatientsJoin 7,000 Miles Campaign to Support Programs for Rare Disease Patients


 

In anticipation of “Rare Disease Day” on February 28, 2018, NORD will be hosting a “7,000 Miles Campaign” for everyone interested in showing support for rare disease patients. The campaign will run from February 1 through February 28, and the goal will be for participants to walk, run, or cycle 7,000 miles during that time period. Funds raised will support NORD’s programs of advocacy, education, research, and patient services. Everyone seeking to improve the lives of rare disease patients is invited to participate and to share information about the campaign with others. More info .

Recommended Reading

Small Kansas Town Turns Night Into Day for Boy With Rare Disease
MDedge Cardiology
NORD Publishes Three New Free Rare Disease Guides for Physicians
MDedge Cardiology
NORD Leads Campaign to Save Orphan Drug Tax Credit
MDedge Cardiology
Webinar Recording on Open Enrollment Available
MDedge Cardiology
Nominate a Colleague or Patient for a NORD Rare Impact Award
MDedge Cardiology
NORD Reopens Call for Abstracts for Research Grants
MDedge Cardiology
Poster Abstracts Due January 31 for European Conference on Rare Diseases and Orphan Products
MDedge Cardiology
Beta Version of ClinicalTrials.gov Website Available for Public Testing
MDedge Cardiology
NORD Welcomes Five New Member Organizations
MDedge Cardiology
Cardiosphere-derived cells may reverse Duchenne heart scarring
MDedge Cardiology